ESPN 51th Annual Meeting

ESPN 2018


 
QUALITY OF LIFE AND CAREGIVER BURDEN SCALE IN IRANIAN CHILDREN ON CONTINUOUS AMBULATORY PERITONEAL DIALYSIS
Nakysa Hooman 1 Parvin Tatarpoor 1 Mohammad Ahmadi, 1 Fariba Jahangiri 1 Leila Ghaffari 1 Haideh Mamiyanloo 2 Zahra Abdolreza- Gharebagh 1 Mitra Hakim-Shooshtar 3 Mostafa Sharifian 4 Mojgan Mazaheri 5 Azar Nickavar 1

1- Iran University of Medical Sciences, Tehran, Iran
2- Islamic Azad University , Tehran Medical Branch
3- Mental Health Research Center, Tehran Institute of Psychiatry- School of Medicine, Iran University of Medical Sciences, Tehran,
4- Pediatric Nephrology Research Center, School of Medicine, Shahid Beheshti University of Medical Sciences (SBMU), Tehran, Iran
5- Semnan university of medical school, Semana , Iran.
 
Introduction:

 Chronic kidney diseases are associated with poor quality of life in patients and their families. Previous studies showed three folds higher rate of exhaustion in peritoneal dialysis compared to hemodialysis patients and their families. Here we studied the quality of life and caregivers burden of children having chronic ambulatory peritoneal dialysis (CAPD) in comparison with other chronic diseases among pediatric patients. 

Material and methods:

 This was a prospective case-control survey conducted between 2013 and 2014 in Ali- Asghar children hospital. Inclusion criteria were age of less than 18 years, having chronic disease diagnosed at least six months earlier. The parents of 13 children on peritoneal dialysis (cases) and 160 children with other chronic disease (controls) were requested to fill in both pedSQL(TM 4.0) questionnaire appropriate to patient’s age and caregiver burden scale (CBS).  We used t-independent test to compare the variables in both groups. P-value < 0.05 was considered significant.

Results:

 Overall 180 questionnaires were filled. CAPD group had higher mean (SD) score of quality of life in all domain including somatic symptoms [67 (25.6) vs. 18.5(15.6)], emotional symptoms [71(17) vs. 20.5(15.1)], social functioning [58(32) vs. 21.1 .(20)] (p-value<0.001). In addition, case group had lower mean (SD) score of caregiver’s burden [50(16.7) vs. 80 (13.5)] compared to control group (P value<0.001). 

Conclusions:

 We observed that CAPD children and their parents had better PedSQL score and lower CBS than other chronic disease. Mostly affected area of quality of life was school functioning in CAPD, whereas, somatic symptoms in control groups.