ESPN 51th Annual Meeting

ESPN 2018


 
Evaluation of the subjective burden of alarm treatment in children with nocturnal enuresis:
LEONIE DEGROOT 1 Tessa Dufour 1 Ann Raes 1 Charlotte VanHerzeele 1 Anne Francoise Spinoit 1 Sevasti Karamaria 1 Lien Dossche 1 Johan Vande Walle 1

1- UGENT, SAFEPEDRUG
 
Introduction:

Enuresis is a frequent disorder in children where postponing therapy results significant psychological and psychiatric comorbidity. Primary care treatments consist of lifestyle adjustments, desmopressin and alarm treatment, as EBM options as first line therapy.  Alarm therapy is often considered as a big burden by both parents and caregivers, although recent objective data are lacking . The aim is to investigate the psychosocial impact of alarm treatment on the child and parents and if patient/parent characteristics can predict the impact.

 

Material and methods:

 Between 4 to 9/ 2017,  40 children and their parents were included in the study.One month after start of the alarm treatment, parents completed a questionnaire by telephone, evaluating the impact and the burden of the alarm treatment from their point of view. The questionnaire was developed for this study and based on existing questionnaires (PinQ, PedsQL, ESvO) and clinical expertise. 

Results:

33 children  who met the inclusion criteria were enrolled in the study, 7/40 were excluded, 9F, age 5-14 years, 10 naïve to treatment. Most relevant questions to detect changes since the start of the alarm treatment were: a child feeling irritated, have pity on your child, worry about your child’s future. Possible associations between changes in the child characteristics since the start of the alarm treatment were also investigated. The study was not able to show a significant association. In 23/33 only the mother was waking up overnight, in 2/33 the father. 

Conclusions:

This study indicates that the burden for children and parents in the overall population is not significant, although there are large intra-individual differences. However to finetune in specific subpopulations, a new and shorter questionnaire should be developed to evaluate the impact of alarm treatment in larger unselected patient groups, and the tool should be validated.This questionnaire could be developed into a tool for the physician to determine whether alarm treatment is the right option for the patient and to anticipate possible stressful factors associated with alarm treatment.