ESPN 51th Annual Meeting

ESPN 2018


 
Breaking Bad News in Children with Chronic Kidney Disease: Questionnaire based study
WEIAM ALMAIMAN 1 AREEJ ALFATTANI 1 TURKI ALSHAREEF 1

1- KING FAISAL SPECIALIST HOSPITAL & RESEARCH CENTRE
 
Introduction:

Breaking bad news to caregivers of children with (CKD) is an important role of nephrologists. In our practice there has been a thought about parental dissatisfaction from breaking bad news in CKD patients. Saudi preferneces for how to be told the bad news in CKD childrens caregivers has not beed studied adaquetly. Our objective was to identfy how much is the emotional & the knowledge satisfaction of caregivers of CKD children , and the relation of their socioeconomic & educational levels with their preferneces in breaking bad news. adequately.

Material and methods:

A questionnaire based study was conducted for caregivers of CKD children, answered a questionnaire about their level of satisfaction and their preferences in breaking bad news.It was conducted in the outpatient clinics , peritoneal dialysis and haemodialysis units at KFSH&RC over 3 months period. Main outcomes were: general emotional satisfaction and knowledge satisfaction in breaking bad news to caregivers of pediatric CKD patients. 

Results:

83 questionnaires from caregivers of CKD patients age (1-14) years, mean age of 8.5 +/- 3.9 years. 

Figure 1 Percentage of Emotional & Knowledge satisfaction

 

Table: caregivers preferences 

 

Disagree % 

Neutral % 

Agree % 

To be alone  

25(31.6%) 

8(10.1%) 

46(58.2%) 

To be supported with a relative  

18(22.8%) 

13(16.5%) 

48(60.8%) 

To be informed about all the details of the disease and the workups that has been done for my kid. 

0 

 

81 (100%) 

I prefer to know only about the information that I asked about 

52 (64.2%) 

4 (4.9%) 

25 (30.9%) 

 To be informed about the prognosis at the time of breaking the news 

19(24.1%) 

8(10.1%) 

52(65.8%) 

 To be informed about the prognosis later not  at the time of breaking the news 

34 (43.0%) 

9(11.4%) 

36(45.6%) 

Conclusions:

  The Saudi population is satisfied emotionally more than the satisfaction about the amount of information that they got. Different demographic data might affect their preferences in the way that they receive the bad news